Monday, April 20, 2026

Janine & Alan

Janine is Michele Budny's little sister. They're 7 years (?) apart. Janine and I have been excommunicated from One El for reasons too innumerable to enumerate, but we continue to be concerned for her. 

Janine closed down her apartment in D.C. and consolidated into her condo in Cleveland, Ohio (not Tennessee).

She and paramour Alan were in Denver for a wedding and decided to see White Sands. Albuququerque's on the way.


Catzilla t-shirt



By the afternoon I was on an even keel and fetched food from Golden Pride. 




The burrito was okay, but the fried chicken & ribs didn't have the jenny say qwah of repasts of yore. Sigh!

The conversation was fun and afterward i slept from 3 pm - 11 pm when I was awakened by a fecal accident. I miscalculated the amount of laxative needed to offset the constipating affects/effects? of the opiates and when i contracted my stomach muscles to roll over and check the time, there was an expulsion.

There's an elaborate layering for just such occassions and along w frequent pauses to let the nausea subside, it took 2 hours to change the bedding.




Despite the sublingual ondansetron's quik-dissolve, it still takes about an hour or so for it to take effect. One does what one can while waiting. 

My right ear gave out a couple of days ago. I'd been treating it w dexamethasone, a general purpose steroid that's $174.00 for 5milliters.



Reynolds Price mentions it in his tale of woe A Whole New Life as giving him a nice boost from the fatigue and relief from the nausea etc.

When i mentioned it to Jessica she said they prescribe it a lot at the end as it relieves all the symptoms the other drugs are supposed to but don't. Problem is, in about three months steroids cause your bones to become so brittle they break at the drop of a hat. The list of side/effects, many serious, and their qwik onset, mean the-powers-that-be save it for the end. 

But, Jessica said, for those three months a patient's quality of life can (maybe) be improved. She wondered though about a woman who died a couple of days ago. She was bedridden, so aside from the relief of the nausea and breathlessness, she didn't get much else. And they cause "moon face," a self-explanatory affect that makes a person look fat. The worst!!!

Here you've spent your whole life restrictively eating in order to be visually stimulating only to lose it at the end. A bum deal to say the least!


Sunday, April 19, 2026

Morning Light

After dealing w yesterday's "entertainments," i'm quick to latch onto the day's early offering. Daytime temps are still cool and nights are still chilly, just like Spring, but the leaves are darkening as if, overnight, we've arrived in Summer.





Saturday, April 18, 2026

Harbingers Indeed!!

It started around 4 pm and within a half hour I was hugging the bowl. The angina escalated to what felt like a full scale infarction. I was screaming.

I called hospice hoping to get some hand-holding. There's not much to be done for an infarction unless you're willing to have an i.v. and I'm not. 

There's liquid morphine, oxygen and maybe some aspirin to try and break up any clots...and just ride it out. Yuh either live or yuh don't. 

I lived.


But at 8 pm it's starting to gear up for another.



To the bulwarks, knaves!



I'm taking strong(er) measures this time starting w a full ml (still a small dose) of morphine w a 4mg tab of hydromorphone (dilaudid) capped w 1mg of clonazapam, an anti-anxiety (benzodiazapine) that works synergistically w the opiates to help w shortness of breath and relieve angina. 

Earlier, when at the peak of the throes, i was ready to check out. But it's by appointment only. As horrible as it is, once I come down (Hey!!! I survived!), I'm focused on having another few hours with no terminal date or time.

This is the next battle...to have the cocktail available to people for when they're ready. This business of having to schedule is bullshit.

Harbingers?

 3:37 am Sat


This is the 3rd "spell" in 24 hours. The one about this time yesterday, then again this evening around 9 pm and now, at 3:30 am. I'm thinking of emailing Dr Hawk (administers the MAID) to ask him to be on alert.


It spirals really fast. I have about 10 minutes from the first twinges until it's full-bore headache, right shoulder & arm start to hurt, pain begins to impair my ability to function. 


We had the syringe loaded w .5ml (of morphine) but i had to go to the kitchen to put in koolaid. Otherwise i throw it up. With the koolaid i can keep it down...at least so dar. 


It's easing off now, but these feel like harbingers.